National Danish Research Health Data Gateway assists researchers with accessing data
Danish health data is unique
For decades, the Danish healthcare system has collected health data on more than 10 million Danes, including now deceased persons. The data is linkable, of high quality, longitudinal, structured, and centralised, covering the entire Danish population. They are essential when doing disease research for the greater good of patients and the Danish society in general.
BETTER USE OF HEALTH DATA
Researchers need to follow a specific application process and a set of requirements when applying for accessing Danish health data for research purposes. To provide a better overview of these processes, the Danish Ministry of Health and Danish Regions (responsible for the Danish hospitals amongst others) have established The Research Health Data Gateway.
Better access to health data benefits the development of new treatment methods and new medicines. This can help increase the quality of life for patients and save lives in the long run.
”It is important that we provide a better overview of and secure easy access to Danish health data enabling world-class health research. It contributes to the development of better treatment methods, new medicine and innovative solutions for the benefit of Danish patients, public health and society.”
“Better sharing of Danish health data is crucial in retaining a strong health research field for the benefit of the Danish population. The Regions are pleased that both Danish and international researchers are assisted in access to Danish health data. This will benefit the Danish patients since more research may be placed in Denmark. Ultimately, it will benefit us all, as we can fuel new and groundbreaking research.”
Get your research started quickly
Overview, guidance and access to apply for health data
The need for information and guidance depends on the specific project and the type of research as well as the researcher’s experience. The Research Health Data Gateway consists of three independent projects:
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The “Metadata Map”
A nationwide online catalogue of available data from the Danish National Health Registers. Use the Metadata Map to search and compare available data from the Danish Health Registers to gain insight into which data sources are most suitable for a given research project.
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The “Application” page
The page provides an overview of relevant authorities to apply to depending on data type as well as an overview of data controllers and their contact details.
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The “Guidance” function
The guidance functions consists of a team that counsels and helps researchers with the first level processes of a research application. Furthermore, it includes a webpage that contains information about application, documentation and approval from the appropriate authority as well as information about the application process. Researchers are able to find information on how to link data across multiple data sources.
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